It was the end of a week of vacation at the New Jersey Shore with a group of friends I’d gone to high school with. There were 13 adults and 14 kids all staying in the same house. It was our last night together, and I was pumped for a great end to the week. I ran out to a boardwalk deli to grab an Italian sub.
I’ve had numerous food allergies since I was a child to peanuts, tree nuts, shellfish and dairy. The deli workers assured me that the sandwich contained no dairy or nuts. The sub came with fries, but I just didn’t think to ask about cross-contamination in the fryer. Back at the house, I started to eat, and within about five minutes, I began coughing and wheezing. Then I broke out in insane hives, and was itching from the top of my head to my feet. I was short of breath. I thought, “This cannot be happening right now.”
I’ve had many minor reactions over the years, but I was always able to treat them with antihistamines. I haven’t needed an epinephrine auto-injector since I was under age 10, and I’m 37 years old now. But I knew I was going into severe anaphylaxis – and it was the worst reaction I’d ever had as an adult.
In the Ambulance, I was Scared
My wife is a registered nurse who works in a hospital cardiac intensive care unit. I pulled her into a back bedroom to tell her what was happening. I almost felt embarrassed that I was having a reaction, even though I know I shouldn’t feel that way. I told her to call 911. She told the dispatcher I was having an anaphylactic reaction. I could feel my body shutting down.
I had one EpiPen with me, which my wife injected into my thigh. When the rescue squad arrived about five minutes later, they loaded me into the ambulance, took my blood pressure, put on an oxygen mask, and started to drive.
My wife asked the driver if they had epinephrine in case I needed more. He told her “no”. At this point, I was genuinely scared. I assumed the ambulance would be equipped to treat basic emergency situations like anaphylaxis. But they couldn’t do anything to help me if I needed more epinephrine.
The ambulance crew told me we needed to make a stop to pick up paramedics. I later learned that paramedics have more training than the emergency responders in the first ambulance. The paramedics jumped on board and started an IV to prep me for the hospital, but they didn’t give me more epinephrine.
On the 13-mile ride there, the reaction didn’t seem to be getting a lot worse, but it wasn’t getting a lot better either. I was relieved to get to the hospital, but not for long. Suddenly, I was struggling to breathe again. I told my wife that I needed more epinephrine – now.
Experience a Wakeup Call
She ran and got the staff and they gave me the shot, along with fluids, antihistamines and steroids. Within a few minutes, I was feeling much better.
I’m still not sure what triggered the reaction. I went back to the restaurant to try to educate them, and they were very defensive. They insisted there was no dairy in the sandwich and nothing in the fryer that could have caused it.
The experience really shook me. I realized I had gotten somewhat complacent about my food allergies because I hadn’t needed epinephrine in almost 30 years. But I’m a father of two kids now, ages 4 and 2. I can’t mess around with my life. Now I take two auto-injectors with me everywhere.
I also got a “medical alert” tattoo on my forearm that says “allergies anaphylaxis.” It’s there in case I’m having a reaction, and I can’t talk to tell anyone what’s wrong. But it’s also a reminder to me to be accountable, to make sure I always have my auto-injectors.
Matt Barber told his story to writer Jenifer Goodwin.
What Can You Do to Prepare?
Jen Jobrack, founder of Food Allergy Pros in Chicago, offers this advice.
- Call the non-emergency number for your local fire department or whichever agency provides emergency medical services (EMS) in your area. Depending on where you live, some ambulance staff have only basic training and may not be allowed to administer epinephrine. So ask which type of emergency medical responder will come to your aid if you call 911 in your area, whether all ambulances stock epinephrine, and which responders are authorized to give it.
- When traveling, carry multiple auto-injectors if possible. If you’re in an area where the ambulances may not have epinephrine, you will have the medication needed to treat yourself on the way to the hospital.
- When you call 911, clearly tell the dispatcher that you’re having an anaphylactic allergic reaction and you need epinephrine. This may trigger the dispatcher to send an ambulance with an Advanced Life Support (ALS) crew. The dispatcher may still send an EMR or EMT crew with less training, if that ambulance can get to you faster.
- Take all auto-injectors you have on hand into the ambulance. Even if basic-trained crews don’t carry epinephrine, many states permit them to help you administer your own auto-injector.
- If you’re not offered epinephrine and you think you need more, ask for it. Some EMS protocols call for giving epinephrine only if a person is in respiratory distress, but there can be many other signs of anaphylaxis.
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